APE – the Asperger Parenting Experience

The Life and Times of one Asperger Parent

A Completed Evaluation (finally) and its Diagnosis

Posted by Patrick on 3 September 2008

I apologize for being vacant from the blog for awhile. Yes, all this time has been spent in limbo somewhere between waiting for appointments and attending them.

Last week, I had the pleasure of taking AS out of kindergarten for a day and escorting him to his evaluation at one of the top 10 children’s hospitals in the US. Those who’ve been through the cognitive and adaptive 4-hour exam with a child understand very well that this is not an easy task.

As expected, he performed brilliantly on the cognitive exam. The psychologist commented several times that he was performing well above his age range for the tasks he had. I was surprised, because most of the objects for the task were things he’d never seen before – like cubes that are different patterns on each side.

And, as expected, when it was time for social, adaptive play, he stumbled, and stumbled, and stumbled. The two parts of the exam were clearly night and day, and it was relatively easy for our psychologist to conclude that AS really does have Asperger’s Syndrome, or some form of high-functioning autism that is very near to it.

I believe at this point we are somewhat relieved to have officially learned this about AS. It does open up things for us which were closed until the diagnosis became official, so that is morbidly good.

Over the coming weeks, I’ll begin sharing some of our outreach options and how they do or don’t work for us with AS as they are applied. We were introduced to the CCB (community board) but because he has an IQ over 70 (it was approximated at 110 to 125, actually) we’re pretty much just hoping for some respite money or some advice.

You know, what I think is funny is how, once you hear that diagnosis for real, we all start questioning what properties of ASD we actually have ourselves. While I’m no hypochondriac, I do profess to small amounts of OCD and ADD at the same time; I also admit a little bit of adolescent aloofness, but then again, it’s an easy mold to slip into for the tweener who rides a wave of shifting insecurity.

We don’t blame anyone for this, nor should we. AS can’t succeed any better than before just because we find root cause after some exhaustive search of the entire family trees for 10 generations. The focus has to be on right now, on what’s next, on the near and not-so-near future; that is where we will succeed.

More to come; stay tuned.


2 Responses to “A Completed Evaluation (finally) and its Diagnosis”

  1. nan said

    Good luck to you. Glad the (first round of) waiting is over…

  2. hello said

    Loved your statment that AS is not a disorder, but a gift. TOTALLY TRUE.

    As with all gifts of character/personality, one extreme on the continuum can be bad, at the other end of the continuum it can be a gift. As extremely DIFFICULT as AS can be, it can always be that amazingly rewarding and delightful when you help that child find their niche.

    Blessings to you!

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